Friday, April 4, 2008

This was me.......

"Hope ever tells us tomorrow will be better."
- Tibullus-


This was me yesterday....very weak, in severe pain, achy all over....and swollen ~UGH~
Regardless of the fact that even after "upping" all that I could med wise...
I still wasn't much better all the way until late evening.

I laid in bed most of the day and read "Jane Eyre" which helped me progress through it nicely. I usually just read a bit of whatever book I am in at the moment each night.

The humidity was (and still is) WAY up and the weather was gloomy and bad for the most part of the day. Which probably was why I was the way I was......today is a bit better for me but the humidity is still very high.

When I finally got out of bed today I had a phone call on my answering machine from a lady calling from a "research" group asking to talk to me.
I apparently have been "referred" by my R.A. Specialist to "participate in a group study on Biological drugs for
Rheumatoid Arthritis."

I haven't called them back yet because I need to think and pray on this one a bit.

Yet on these types of days I want to scream......"yes, give me whatever you got."
I really just want to be healed and finally "fixed" of this you know? And get my normal life back.

I haven't said much about it all lately because I feel so fortunate really......
Because I am not always like this and so many other people have such worse battles than I do.

In some ways though I feel I need to use my voice to helpraise awareness to this thing because so many others, including children suffer with it....yet in other ways....
I don't want it to have any "glory."
Not in my life at least.

I was at a dinner the other night with some ladies and two of them just happen to do volunter work with a "R.A. summer camp for children" here in our local area.

They were telling me of several very sad cases of children with this debilitating disease. They spoke of a TWO year old that has just been diagnosed. I was so sad to hear that.
I mean it's one thing to be an adult and it's another to be a small child that can't even communicate. That grieves my heart because I have and do feel the pain involved I wouldn't want a child to have to deal with it.

Health woes are not fun. But I haven't given up hope.
Winston Churchill:
"The pessimist sees difficulty in every opportunity.
The optimist sees the opportunity in every difficulty."


I'm believing for the best.......not just for me.
But also for all of you and yours...... no matter WHAT your battle may be.

Don't give up hoping.

9 comments:

Julie said...

Joyce,

I am so sorry to hear that you have been unwell. I hope you continue to get better. "Jane Eyre" is a good sick bed companion!

You couldn't have picked a much worse place to live than B.R. for humidity-related health problems!

Joyce said...

Ugh....I know it is SOOOO humid here today it feels like someone threw a very WET and HEAVY blanket on you. And we aren't EVEN into the summer yet...blah. These storms coming aren't helping. Usally once the "pressure" changes...I feel better.
We HAVE to move. Everyone tells us to go to Arizona. :~) We need to check that out.

Angie(quillysilly) said...

Sorry to hear that you have had such a bad day today. I ruined both of my ankles running track in Jr. & High School. They tend to hurt on these rainy days, so I can't even imagine how it is for you.

I hope you are far from the bad weather that came through...Get some rest! Angie

Susie Harris said...

Im so sorry that you feel yuk. I wish that I could do something for you. Of all places for you to live with this humdity. Our frinds from church have a little girl thats six and has it. Poor little thing ... she even gets it so bad she cant walk. They are trying different meds. They say she may out grow it. Didnt know you could. Well take care and I will keep you in my prayers tonight. Susie

Joyce said...

Susie,
I'm hoping I "grow" out of it. HA! Oh well.....if I can at least get it into "remission" that would be good.
A lot of times....like yesterday. I can't walk either. It's crazy and painful. Weird how it works.
Angie,
My kids have injuries from Track and from Football that bother them during weather changes.
Today most of that "weather" has stayed North of us but we are getting the "tail end" of it....we have "Tornado" watches until Midnight...we've been under them all day! Blah. Hopefully they will pass and we can dry up a bit..we did need the rain. Can't complain about that.
:~)
Joyce

iwka said...

There might be a resolution. MOVE OUT OF BATON ROUGE! When Keith moved from B.R To Moscow, most of his allergies dissappeared. I am not saying that's the case with you, but.... move closer to us....

Joyce said...

Iwka,
Our families in Missouri, Iowa, and Illinois would LOVE us to move that way. Gabe called tonight..he wants us up there in Conn. with him...ugh. I told him that it's WAY tooooo cold there for me.
I'm Southern now. HA! I am thinking ...something...."midway" maybe??
HA!

SweetAnnee said...

Oh Honey..
I am sad you felt so bad..It was a day lost in the garden..BUT .I prayed today for you..to feel better each day.

So fun also to get great mail surprises.and your breakfast looks so yummy and the pretend one..so dull.
LOL
fondly, Deena
deena

Alice said...

Thank you so much, Joyce. My dear cousin suffers from RA too. I really don't know how she accomplishes as much as she does. I pray that a real cure can be found soon.